#HAM2014 #hydrocephalusawareness #hydrocephalus

Post surgery 1:  3 weeks old
Post surgery 2:  14 months old
Post surgery 4:  10 years old
Grandma watching Haley loving life
Haley power 2014

Haley Matisse was born on September 27, 2002.  Prior to her birth she had been given the diagnosis of Dandy Walker Syndrome which meant she had hydrocephalus. Jason and Kelsee waited impatiently for this miracle child to come into their lives never doubting that she was a gift from a loving Heavenly Father.  As one of the grandparents of this baby, I knew that she was coming to a home where she would be loved and taught to walk in the light of His love. I don't think I understood what a Leap of Faith it would be for these three remarkable people!  

September is Hydrocephalus Awareness Month.  

Hydrocephalus (hi'dro-sef'a-lus) is an abnormal accumulation of cerebrospinal fluid (CSF) within cavities of the brain called ventricles.

The 2014 Louisville Hydrocephalus Association WALK is on September 27th, Haley's 12th birthday. Check out her page, to learn more about hydrocephalus, and/or donate to the cause!

http://hawalk.kintera.org/faf/donorReg/donorPledge.asp?ievent=1098271&supId=411227936

Jason and Kelsee in 1991 at his Eagle Scout court of honor.  They met at a youth conference a few years earlier.  Jason left for college, returned the next summer, prepared for a left for this mission. He returned from his mission in the summer of 1994.








Jason and Kelsee at the Washington D.C. Temple in December 1994 on their wedding day.









Jason, Kelsee, and Haley at the Seattle Temple in May 2004 sealing day.  (Yes, I was there, too!)  ETERNAL FAMILY!